Dedicated MDA family caregivers share best practices for supporting loved ones and themselves
“If I was down, who was going to take care of him?”
Women with neuromuscular disorders need the same gynecologic care as other women — and sometimes more
Katrina Gossett knows the importance of gynecologic (pelvic) exams, but she is not eager to repeat her last exam experience.
Katrina Gossett, 29, has only had one gynecologic (pelvic) exam in her life, and it’s not an experience she’s eager to repeat.
Through its fundraising, advocacy, health care services and support network, MDA helps make possible the everyday successes of its families and the lifesaving work of its researchers
For people fighting neuromuscular disease,“progress” is a word that describes encouraging advances in the search for treatments and cures. But it’s also a word that evokes the forward-looking perspectives and remarkable life journeys of those living with these diseases who meet extraordinary challenges.
After the fear subsided, my diagnosis gave me a healthy perspective on life
Upon hearing my diagnosis — type 1 myotonic muscular dystrophy (MMD, or DM) — at the age of 20, I must admit, my world crumbled for a moment. I’ll never forget how the room seemed to shrink and spin, how the doctor’s voice morphed into white noise, and how visions of immobility caught my breath.
They say 'three's a crowd,' but what if the third person is your personal care assistant? A psychologist with SMA offers some dating strategies.
“Samantha” is a typical 30-something single female who has a successful, fulfilling career in investment banking. Samantha also enjoys an active social life, but when she looks around her and sees friends and peers in romantic relationships, she can’t help but desire the same for herself.
Earlier this year, Bonnie and Ethan Marquez and their sons, Peyton, 8, and Logan, 11, were on vacation in Yosemite National Park when Peyton, who has Duchenne muscular dystrophy (DMD), became intrigued by the park’s famous Half Dome — a 4,700-foot-high granite rock formation in the shape of, you guess it, a dome sliced in half.