MDA re-launches its flagship publication, with a fresh look and the same high-quality content for people living with muscle disease
The Winter 2014 issue of Quest marks a new chapter for MDA’s flagship publication in print. Our goal with this redesign is to provide you, our dedicated readership, with a more contemporary and visually dynamic resource through which to present the research news and broader narratives that matter most to MDA families and supporters and all those affected by neuromuscular disease.
A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19.
A look at how today's gene therapy research for DMD is overcoming obstacles
The year was 1986, and the Duchenne muscular dystrophy (DMD) community was more excited than it had been for decades. A group of MDA-supported researchers had identified the genetic cause of the disorder — any of a number of different flaws (“mutations”) in the gene for a newly identified muscle protein, one that would come to be called dystrophin.
My crutches were a source of anxiety about not looking ‘normal,’ until I learned to let go by just holding on to them
When I fell several months ago and couldn’t get up under my own power, I knew it was time to let go. Or rather, time to finally grab a hold.
For the first 26 years of my life, I could walk on my own with confidence. But on that day, as I propped myself up using the bumper of a car and a mailbox, I realized that was no longer the case.
The Abilities Expo, held in seven U.S. cities annually, offers a peek at new assistive technology and trends as well as product test-drives
Every industry has its trade shows and the granddaddy for the disability community is the Abilities Expo. Introduced in 1979, the Expo’s target audience is people with disabilities, their family members, caregivers, seniors, wounded veterans and health care professionals.
Without the help of my paid caregivers, I can’t get out of bed. I put my life in their hands every day, and that’s why it was such a slap in the face when one of my aides stole my work laptop.
It’s been well-documented that individuals with disabilities are victimized by crime, including burglary/theft, at much higher rates than the rest of the population. In fact, we’re often targeted...